So hospital got a call on the emergency line I have for them and they said that I should come up to get my bloods checked, I went home and packed a small bag and went off to hospital into the cancer center.
Everything was pretty prompt, nurse was right there and took me down into a bay and I got my bloods taken and spoke with a doctor about what had been occurring and why I was there. I was expecting the bloods to take a while longer than the normal visit on a Friday morning at the hospital but it was nearly 3 hours before the nurse came back and started taking details for staying in, she wasn't giving me a number on what the platelets were but I knew they were not good.
Shortly after, a doctor arrived and he was able to tell me that they were only 6. The norm of what happens when I arrive they order in some immunoglobulin which can take a while to arrive and get that into me ASAP as it seems to work pretty fast compared to other drugs. Because I have reacted to them in the past they were very reluctant to give me it during the night in case I was to take a reaction and with the small number of staff it would cause them problems. Instead they gave me a blast of 60mgs of steroids to help try and push them up somewhat and I was taken round to the bay I would be staying in.
The nights sleep was not awful at about 2am the steroids had kicked in and I felt like I was never going to sleep but I was able to get a few winks in, that morning I was expecting things to get rolling, get the IVIG and maybe some platelets too but... about 1120 the consultant came round and asked a few questions as to what had happened and wanted to see the bruises and rash at which point he said about waiting for the blood results from today at which point I told him they had not been taken and that all that had been done was the extra dose of steroids. I thought when he left he might have got that organised to get taken and move forward.
A few hours later with still no sign of anything and asking the nurses two or three times about getting the bloods taken I finally got speaking to one that was able to take bloods... hematology and not able to take bloods... but they were finally taken.
So me being me assumed that the previous night since they were reluctant to give me the IVIG they still would have ordered it for me to get... how foolish, another doctor came around to speak to me about 1600 at this point I have now been here for roughly 21 hrs and all they have done it increase my tablets. It was very clear I was unhappy, the platelets from the check were now down to 2 and the doctor said that they were expecting them to be down further and said about getting a platelet infusion, which is grand and when asked about the IVIG she said she'd have to order it in, I asked why it wasn't ordered at the very start when they first refused to give me it so it would be ready since they knew the counts would be lower rather than having to wait longer to get things resolved, and why the bloods were not taken in the morning as basically everything relies on the results. She had no reason and even agreed that it was a shambles. I was very unhappy, irritated and felt as if I was just thrown in a corner to be forgotten.
Soon she came back, very apologetic but she got her finger out and got things organised, had the IVIG ordered and ordered platelets, platelets would definitely be there in the evening but the IVIG may not be there till tomorrow at the earliest and maybe even the day after, but at least I knew now that something was happening and she mentioned that my bloods WILL be taken in the morning.
That evening I got my bag of platelets no issues and all went in ok.
The nights sleep wasn't great but not awful the combination of piriton and steroids equaled each other out and I was able to get a few hours or so, its hard to tell as it was quite broken....