My last post I believe was just under a year ago when I had the clot in my leg, since then things have been good on paper, counts were good(too good for my liking), steroids being reduced until I got to 4mg and started to get withdrawal symptoms. I was very pleased to get to this level as the lowest we were able to get to before was 11mg a day so it was a big step and a lot of time. Since I was getting the withdrawal symptoms they stuck them at 4/5 alternate days which seemed to help. But that's the good news on the other side of the coin I can't remember the last time I didn't have a chest infection or feel physically able to push myself like I used to, even a simple walk in the evening felt too much.
And so this brings me to the recent history, at the start of September I started coughing a bit worse than normal followed by a very runny nose and things were just getting worse and worse I think it was the next Monday I went to the gp after spending most of the weekend in bed and she gave me antibiotics and got a blood sample taken. Things didn't improve much, just in time for my annual leave, I think doing nothing the whole time is an exaggeration of what I'd done. I was in no state to go back to work as I'd been up most of the night (and the last week) with more sweats and had started coughing up blood. My gp phoned me to see how I was and she urged me to phone the hospital basically playing my hand for me by phoning them first. So they told me to come up and they booked me in to have a ct scan that day to see if there are any clots in my lungs. It was a long day in hospital but I was able to get the scan and preliminary results, they didn't find any clots but they did find swollen nodes.
I have this strangest type of luck that when getting checked for something they discover something else.
Well they booked me in for another ct soon after to see if it had spread elsewhere, on the Wednesday going to hospital I had a feeling I was going to be kept in and prepared the house for me not being there although I still had that hope that I wouldn't and didn't bring a bag.
It all started off very positively no signs of any other swollen nodes and the swollen nodes could be cavities or lesions. Then they asked how I was which was all pretty shit, at this point they wanted to keep me in. I dunno if it was what I had said or they had planned this before, but the mood very quickly changed after what I had said. They let me go home to quickly grab some things and straight back and put me in isolation.