Blog 6/2018 - 1

Wednesday, 13 June 2018


It was good, it was really good


Hi all,

It's been quite a while since my last post, just short of three years and near four years of everything going incredibly well and smoothly, the odd hick-up of a cold, flu and chest infection but nothing of any real catastrophic proportions.

As the title reads, "It was good it was really good", I have had the most incredible time, being able to explore the country around me and be able to think of more than what will happen on the next hospital appointment, whether I can make a plan to go out that day or will there be a chance that I could end up in hospital if I was to try anything and not even anything stupid.

I've really enjoyed it and now I know what I like and what places I love to visit and what my limits are.

Being "normal" for a while or at least as close to normal as I'll possibly ever be was an experience and I enjoyed it.

But as the title also states, it "was" good, over the last few weeks things have been cropping up, I got a bruise on my thigh which turned out a lot worse than the bang on it should have gave me but at least I knew what caused it and then I got a nasty bruise on my arm with no idea where it came from and then gradually smaller bruises appearing all over with no real reasoning behind them and a lot of them. Then I got a slight ding on my shin and I knew this would be a good judge on how the platelets where... It turned into a large lump of a purple bruise and then I checked for some petechiae rash and there were some dots about, at that stage I knew I had to go and visit hospital and get the bloods checked and get them fixed if there was something wrong.

I had also noticed some lumps appearing on the back of my head believing it was just a bit of a heat rash with the warm weather lately or maybe some midgy bites, but more on that later, first things first lets call the hospital!!!