I was pleasantly surprised to get the phone call on Monday from the secretary and even happier that they are going ahead as planned, I’ve to go on Friday morning to give bloods and then in on Monday to get the surgery done, that is the plan but again they say a lot of stuff but it never seems to go how it’s supposed to.
Stupidly and my own doing I got my dates for the cardiology appointment mixed up, I had it in my head that it was Monday when it was in fact Tuesday, despite knowing it was the 20th and that Monday was the 19th for some reason I still thought it was the Monday. The thing with it though is that it didn’t change anything, it was just a phone call and I didn’t have to do anything to prepare, so I was just sitting doing what I normally do with my phone beside me.
On the Tuesday when they did phone there was nothing to change, just updates from the last year, being more tired and fatigued and putting on a weight slowly, the aches from my legs, surgery(possibly) and being in hospital last year. But all my problems are more a combination of things than anything in particular.
Like the fatigue, not only is there the reduction in steroids, there’s the lung surgery, the infection last year, the lack of exercise with the legs being sore and also the beta blockers they are all playing factors in the lack of energy and being tired and can’t be pinned down on one or the other and most likely a combination. This is the same for all my problems, it’s a combination rather than anything specific.
He was surprised that the surgeons hadn’t been in contact with him to make sure it was all ok to go ahead but that doesn’t really surprise me, but he is happy for it to go ahead and after it’s all done, which he is being optimistic of it being in 6 months for both legs that there is a new medication that he is going to put me on to. I didn’t bother finding out the name cause there’s no point, it is at least 6 months away.
The rest of the week has been very low key, I only left the house on Wednesday morning to pick up a few things from Argos and then get in more food supplies to last me, playing Metal Gear Solid 2 and the new Tomb Raider remastered release.
So this morning I woke up early got all sorted and had planned to do a bin run after hospital as I was expecting to go in get blood taken and away, 15-20 mins tops. With getting up early I decided rather than just waiting around I’d go ahead, left to go to the dump and then headed over to the appointment, I got there on time and was there at 10.30 and was asked to take a seat in one of the wards.
While I was sitting there I could overhear half a conversation on the phone, in short it’s too soon to take the bloods and they can’t do it today…
The nurse came in and told me and explained the shelf life of the blood is only 72 hours and if they take it today it will have expired come Monday when it’s needed and that I would be best having the surgery on a Tuesday or Wednesday… I’m was lost for words, what can you say to that? Anyway she tries to go get something organised so that maybe the surgery can go ahead on Monday.
She made calls and emails and went away off somewhere to chase something up, she said a few names, I don’t know the people or what they said, but I’ve to come back again tomorrow to another ward to get the bloods done and they send it off and she’s emailed someone else who’s to make sure it’s definitely done for Monday, whether it will be or not I have no idea.
I’m starting to think that maybe getting this surgery is maybe a really bad idea, there’s so many things that have went wrong and only one appointment has went ahead as planned throughout the whole process…
6th Nov – Pre-Op - goes ahead as planned
7th Dec – Appointment with new surgeon – cancelled
18th Jan – Appointment with new surgeon – cancelled
25th Jan – Appointment with new surgeon – Reception not putting out notes and not getting xray
9th Feb – Surgery – Cancelled, misreading notes about being in hospital was 23 and not 24
9th Feb – Surgery – Cancelled, haemolysing bloods and not getting irradiated bloods in time
23rd Feb – Bloods for Surgery – Too far from date
24th Feb – Bloods for Surgery - ???
26th Feb – Surgery - ???
And the thing is, this is just the start, nothing has actually been done and not only is there to be another leg to be done but the whole follow-up appointments and therapy too.
How can there possibly be so many screwups? I’m just completely dumbfounded.