So now Tuesday morning I was woken up around 5 to get my blood pressure taken, they normally do this before they go round and take the bloods at about 6, I dosed off and then woke up at 8.30... no bloods taken... no... bloods... taken.. they could have got the sample of the blood that was steaming out my ears.. I called the nurse said about getting them taken, about an hour and a half later they were taken.
A bit later another consultant came round to see me and asked if I got the IVIG yesterday at which point I said that all I have got was a bag of platelets and increased steroids, no IVIG yesterday and little sign of getting it today and mentioning that I also had to ask to get my bloods taken again today. Didn't seem to feel any urgency in what was being said to me despite me saying that I was getting quite frustrated with the lack of anything happening and nothing happening if I didn't ask for it to be done.
Later that day they came with the IVIG and were setting it all up and then stopped... it was the wrong brand and the nurses didn't want to give me it without speaking to a doctor first, so finally an hour later they started the drip, all went very smoothly with no issues and the normal problem of there being bubbles in the line was avoided. That evening I was expecting to get more platelets as the doctor had mentioned that, but of course it didn't happen because I didn't say anything to the nurses.
All was grand that evening and the rash on my head was getting a bit sore and itchy, we knew as soon as we seen it that it was shingles and we told the nurse about it who had to get the doctor to have a look at it. Of course... the doctor has never seen shingles before so how he is supposed to know what the early stages of shingles look like I have no idea.
I complained later again about the pain and itchiness. At this point the nurse thought it would be good to get another doctor with a bit more experience to have a look at it to get her judgement... I'm quite sure she took a picture of it to send to someone who might actually have an idea what shingles look like, but basically she said she was unsure if it was or not.
Just took some paracetamol and made sure I avoided laying on that side of my head. Not as easy as it sounds, but slept fairly well just something similar to the previous night were it was a bit broken.